Articles from Global Liver Institute

Geneva, Switzerland, May 22, 2025 (GLOBE NEWSWIRE) -- Leading health organizations, policymakers, and public health advocates will come together during the 78th World Health Assembly (WHA78) for a pivotal side event titled “Together for Better Liver Health – Strengthening Public Health Responses to Metabolic Disease”. This policy event co-hosted by Global Liver Institute (GLI), the European Association for the Study of the Liver (EASL), and the American Association for the Study of Liver Disease (AASLD) and endorsed by over 20 international medical societies and organizations, aims to mobilize global support for the formal recognition of Steatotic Liver Disease (SLD) as a Core Non-Communicable Disease (NCD) and lay the groundwork for a WHO Draft Resolution addressing this urgent public health challenge.

Washington, D.C., March 13, 2025 (GLOBE NEWSWIRE) -- Global Liver Institute (GLI) and King’s College Hospital NHS Foundation Trust (KCH) are proud to announce the first Advanced Advocacy Academy (A3) in the United Kingdom, an innovative program dedicated to increasing education, awareness, and advocacy for liver health. Following the success of previous A3 events in the United States, this inaugural UK session, taking place in London, marks a significant step in empowering patients, caregivers, and healthcare providers with the knowledge and tools needed to advance liver health initiatives globally.

Washington, DC, Sept. 03, 2024 (GLOBE NEWSWIRE) -- The Board of Directors of Global Liver Institute (GLI), the premier liver patient advocacy organization, has appointed Larry R. Holden as the organization’s Chief Executive Officer, as of September 2024. Mr. Holden succeeds Founder and ten-year CEO Donna R. Cryer, JD, as the chief executive of the high-impact, patient-centered organization.

Washington, D.C., Feb. 01, 2025 (GLOBE NEWSWIRE) -- As rural healthcare access shrinks across the United States and remains limited worldwide, Global Liver Institute (GLI) is shining a spotlight on the critical need for awareness and education about rare liver diseases during Rare Liver Diseases Month. Through its annual #RareAware campaign, the patient advocacy organization is calling for more open conversations about these conditions in rural areas, where patients often face life-threatening delays in diagnosis and treatment due to a shortage of healthcare resources, specialists, and education.With over 190 rural hospitals closed in the US since 2005 and 700 more at risk, timely medical care is increasingly scarce. Studies from around the globe have shown that biliary atresia and other genetic conditions are not only more prevalent but are often diagnosed later in rural populations due to the lack of specialized care. GLI’s campaign seeks to tackle these disparities head-on by bringing rare liver diseases into the spotlight and encouraging conversations online and in communities that could lead to earlier diagnoses and, ultimately, save lives.Larry R. Holden, CEO of GLI, emphasized the importance of awareness: “Normalizing conversations about rare liver diseases is key to breaking barriers to diagnosis, especially in rural areas where healthcare resources are scarce. By increasing awareness, we can bridge critical gaps in diagnosis and care, particularly in underserved rural areas, and empower individuals and communities to act early.”Rare liver diseases are not always on the radar in rural communities, and often, the symptoms are overlooked or misdiagnosed. Since they are affiliated with major academic institutions, the NORD Rare Disease Centers of Excellence are concentrated in urban and suburban parts of the country. Studies indicate that rural healthcare providers are less equipped to manage these complex conditions due to inadequate access to specialists and insufficient training. With more than 90% of rural counties in the U.S. experiencing shortages of primary care physicians (let alone rare disease specialists), addressing these challenges has never been more urgent.“My own experience as a patient in a rural area taught me how vital it is to share our stories and raise awareness. In rural and underserved areas, people listen to those who sound like them, live near them, or share similar experiences,” said Kristin Hatcher, GLI’s Program Director of Pediatric and Rare Liver Disease and rare liver disease patient advocate. “When rare liver diseases become part of everyday conversations, especially among friends, family, and neighbors, it creates a ripple effect. It can truly make the difference between life and death.”To address this critical need, GLI will host in-person events throughout February, such as Rare and Rural Science Fairs and Clinical and Research Roundtables at rural medical schools to educate healthcare providers and the public about the unique challenges faced. GLI is also expanding its voice through its annual #RareAware campaign featuring patient and clinician stories and is partnering with groups alongside the EveryLife Foundation to advocate for policies that improve access to specialized care in underserved areas.GLI urges everyone to join the conversation this month — whether through social media, local discussions, or educational resources. Everyone can be involved in the vital work of raising awareness for early recognition and bridging gaps in care, especially where specialists are scarce.

Global Liver Institute’s #OctoberIs4Livers Campaign Sheds Light on Unique Challenges and Solutions in Communities Facing Barriers

Global Liver Institute Unites the Field in Times of Name Changes and New Treatments

Global Liver Institute Convenes Fruitful Meeting on the Sidelines of WHA77

GLI Celebrates Approval of Madrigal Pharmaceutical’s Rezdiffra™ (resmetirom) as Milestone for Liver Health

Global Liver Institute Leads Rare Liver Diseases Month Campaign to Highlight Ways to Smooth Care Transitions

Global Liver Institute’s Second Edition “Global State of Liver Health” Report Reveals Promising Opportunities

Global Liver Institute Leads International Program to Build Hope and Raise Awareness during October, Liver Cancer Awareness Month

Global Liver Institute Convenes Largest Number of Community Events around the World in the 6 Years of International NASH Day

Patients point to numerous flaws in ICER model

Lack of Data and Faulty Assumptions Weaken Usefulness of ICER Recommendations

Global Liver Institute Draws Attention to Rare Liver Diseases & Pregnancy during Third Annual #RareAware Campaign

Global Liver Institute’s “Global State of Liver Health” Report Exposes Alarming Trends

Washington, D.C., Oct. 04, 2022 (GLOBE NEWSWIRE) -- Global Liver Institute (GLI), the premier patient-led liver health nonprofit operating worldwide, announces that the Office of Disease Prevention and Health Promotion (ODPHP) within the U.S. Department of Health and Human Services (HHS) has recognized the organization as a Healthy People 2030 Champion. 

Global Liver Institute Launches 5th Annual #OctoberIs4Livers Campaign: Driving Equity in Liver Cancers