(BPT) - Diego Serna's life changed forever in January 2020 when what seemed like a normal Saturday morning playing video games turned into a medical emergency for the then 13-year-old. After a frightening discovery of swollen, painful hands led to a devastating leukemia diagnosis, Diego and his family faced not just one challenge, but a series of them-including a heartbreaking relapse nine months into treatment. For Diego and his family, cancer has been more than a medical journey-it has been a battle that has impacted every aspect of their lives.
While leading-edge medical treatments addressed the disease, it was supportive care at City of Hope that helped Diego and his family navigate their new reality. Through counseling sessions with a psychologist, support from a child life specialist and social worker, and dedicated activities even when isolation was necessary, Diego found ways to cope with his treatment journey. "The supportive care team makes it a little easier," his father shares. "They help you understand what you're going through."
What is Supportive Care?
Supportive care encompasses services that ease the physical, emotional and psychological burdens of cancer. These programs are designed to treat the whole person, not just the disease, which helps patients to focus on their recovery and well-being.
For many, a cancer diagnosis triggers a cascade of worries:
- How do I manage pain?
- Will I ever look like myself again?
- What will happen to me financially?
- How will I explain this to my children?
Supportive care helps address these pressing concerns by offering resources such as pain management, psychological counseling, financial assistance and family support. Research shows supportive care can significantly enhance patient satisfaction and quality of life. Additional health benefits are reduced hospital stays and readmissions and the prevention of complications. The end result: improved overall outcomes.
The Mental Health Perspective
"Cancer doesn't just impact the body; it profoundly affects the mind and spirit," says Jeanelle Folbrecht, Ph.D., a psychologist specializing in oncology care at City of Hope's Los Angeles cancer center. "Supportive care empowers patients to face their fears and uncertainties-whether it's managing pain, coping with changes in appearance or addressing financial and familial stressors. By tackling these challenges head-on, we help patients build resilience and focus on what matters most in their journey."
Expanding Access Through National Collaboration
Despite these benefits, fewer than 20% of U.S. cancer patients receive care at National Cancer Institute-designated centers like City of Hope where supportive care is widely available, leaving 80% with inconsistent or limited access to these critical services.
To address these gaps, a coalition of organizations, including City of Hope, is working to make supportive care a standard practice in cancer treatment. Together for Supportive Cancer Care is a national coalition of organizations from across sectors working to support all people with cancer. This effort focuses on improving outcomes and quality of life and lowering the cost of care by expanding early, equitable access to supportive cancer care. Coalition members will be working collaboratively across three focus areas of policy, research and employer support.
The initiative seeks to address inequities and ensure that all patients, regardless of background or location, have access to these vital services. A growing body of evidence shows that supportive cancer care improves patient treatment outcomes and quality of life, while providing higher-value care and lowering long-term health care costs. However, the benefits of supportive care are not currently accessible to everyone with cancer.
A Compassionate Future
Diego's story underscores the significant difference supportive care can make. Today, he's back to playing music in a mariachi band-an activity that during treatment seemed impossibly out of reach. As national efforts continue to grow, supportive care is poised to become a cornerstone of cancer treatment-a compassionate approach that puts patients and their families at the center of care, every step of the way.
Photo courtesy "RewritingCancer" / BBC StoryWorks Commercial Productions